diff --git a/about/index.html b/about/index.html index b2d5d67a..0db5241e 100644 --- a/about/index.html +++ b/about/index.html @@ -491,7 +491,7 @@ drop-shadow(0.1rem 0.1rem 0.2rem rgba(30, 30, 30, 0.8))

You can call me Leilukin. I am a Malaysian Chinese, queer, non-binary lesbian born in the early 90s. My pronouns are they/them and she/her in English, and in Chinese. I am a web deevloper with 8 years of experience in the graphic design field.

I speak Mandarin, English, Cantonese and Malay, though I am most fluent in Mandarin and English.

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I am also autistic, so I use this website to catalogue my interests.

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I am also disabled — I am neurodivergent, specifically autistic (so making this website has been a great way to catalogue my interests), and visually impaired, specifically I have retinitis pigmentosa (RP).

Leilukin is not my real name, but it is an internet pseudonym that I have used since I was a teenager, so the name has become my online identity, and I tend to go by Leilukin in informal and hobbyist online spaces.

Check out my Now page to learn what I am doing currently.

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    + + Living with Retinitis Pigmentosa | Articles + + +

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    + Living with Retinitis Pigmentosa +

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  • My Articles for Video Games with Their Own Pages

    diff --git a/articles/living-with-retinitis-pigmentosa/index.html b/articles/living-with-retinitis-pigmentosa/index.html new file mode 100644 index 00000000..41661cf3 --- /dev/null +++ b/articles/living-with-retinitis-pigmentosa/index.html @@ -0,0 +1,485 @@ + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + Living with Retinitis Pigmentosa | Articles | Leilukin's Hub + + + + +
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    Living with Retinitis Pigmentosa

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    On 30 November 2024, I was diagnosed with retinitis pigmentosa (RP) after seeing an eye doctor.

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    My feelings after learning that I have this genetic eye disease that causes gradual vision loss and currently has no cure was more relieved than upset, because I was relieved that to have finally understood the reason behind a lot of the difficulties in my daily life as I grew older, in addition to my autism.

    +

    Furthermore, my parents and I already suspected that I have inherited an eye condition that causes visual impairment after learning that some of my relatives on my father's side are starting to have eyesight problems. Therefore, I have accepted the possibility that I might have some incurable eye condition even before my official RP diagnosis. I had relied on glasses throughout most of my life due to having myopia and astigmatism, so I was already not new to vision conditions.

    +

    In retrospect, my RP symptoms started to manifest to the point of impacting my daily life in my early 20s. I started to bump into things more often when I walk. My eyes got more sensitive to bright light, including sunlight, to the extent that I found it difficult to see things under sunlight and thus needing sunglasses. My subconscious began to get afraid of falling, causing me to get much more cautious when I walk, especially when walking on steps and crossing over drains, especially in places I was not familiar with. I also had a hard time seeing things not directly in front of me without turning my head.

    +

    For a while, my parents and I thought this was because of my autism, as it makes me find it difficult to multitask, including paying attention to all my surroundings at once outside, and me spending too much time sitting in front of a computer, especially since my jobs have all involved a large amount of computer usage, and thus getting less physical exercise. However, now that I was diagnosed with RP, things finally clicked into place: turns out, my peripheral vision had started to get weaker, and my eyes became more sensitive to bright light, including sunlight. In addition, my eye doctor discovered that I am having a mild cataract as a complication of RP.

    +

    Since there is currently no cure for RP, the best I can do is to take care of my remaining vision as much as I can, mainly by continuing to wear sunglasses every time I go out in daytime to protect my eyes from sunlight. I am also adjusting my habits of using digital devices, by making the font sizes of my devices larger to make things more comfortable for me to read and trying to take regular breaks from digital screens.

    +

    Being diagnosed with a genetic eye disease that can cause vision loss also made me glad that I have started to learn to use screen readers. Even before my diagnosis, I have been using screen readers such as NVDA on Windows and TalkBack on Android to test website accessibility, including my own websites. It is a good idea to prepare myself for the possibility of losing enough vision to the degree of needing low vision aid and assistive technologies. In fact, since I was diagnosed with RP through a dilated eye exam, I was unable to see things clearly for about 12 hours after receiving the eye drop that dilated my eyes, so for the immediate couple of hours after seeing my eye doctor, I needed to activate TalkBack to be able to read things on my Android phone. Furthermore, I am also planning on learning braille.

    +

    I do not write this article to ask for pity. I have accepted that I am visually impaired and autistic, and my disabilities are a huge part of who I am, as much as being a non-binary lesbian on the asexual and aromantic spectrum. Instead, I am sharing my story to let other people who have similar conditions that they are not alone, and we are worthy.

    +

    I coded a responsive Disability Pride flag in CSS during the Disability Pride Month in July (which is also my birth month) 2024, so it would be fitting to conclude this article with this Pride flag I coded.

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    + + + \ No newline at end of file diff --git a/categories/disability/index.html b/categories/disability/index.html new file mode 100644 index 00000000..4c329bb3 --- /dev/null +++ b/categories/disability/index.html @@ -0,0 +1,438 @@ + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + + Content Category: "disability" | Leilukin's Hub + + + + +
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    Content Category: "disability"

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    All contents under the "disability" category on Leilukin's Hub.

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    1 Contents Filed Under "disability"

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  • disability (1)
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  • retinitis pigmentosa (1)
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  • shrines (4)
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    Content Category: "personal life"

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    All contents under the "personal life" category on Leilukin's Hub.

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    Content Category: "retinitis pigmentosa"

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    All contents under the "retinitis pigmentosa" category on Leilukin's Hub.

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    1 Contents Filed Under "retinitis pigmentosa"

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    See all content categories.

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    + 15 December 2024 +

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    10 December 2024 diff --git a/changelogs/index.html b/changelogs/index.html index d0b30615..ed25764c 100644 --- a/changelogs/index.html +++ b/changelogs/index.html @@ -471,6 +471,11 @@ drop-shadow(0.1rem 0.1rem 0.2rem rgba(30, 30, 30, 0.8))

    Latest Changelogs

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    Latest Changelogs

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    Website Changelogs

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    Changelogs of my website.

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    To get notified of the updates on this website, you can subscribe to its RSS feed, which contains new articles, blog posts and website changelogs.

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    Latest Changelogs

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    + + + \ No newline at end of file diff --git a/feed.xml b/feed.xml index a40bda78..05991771 100644 --- a/feed.xml +++ b/feed.xml @@ -4,13 +4,41 @@ Leilukin's personal website. - 2024-12-14T12:43:45Z + 2024-12-15T05:15:01Z https://leilukin.com/ Leilukin contact@leilukin.com + + Changelog: 15 December 2024 + + 2024-12-15T05:14:12Z + https://leilukin.com/ + <ul> +<li>Add new article: <a href="https://leilukin.com/articles/living-with-retinitis-pigmentosa">&quot;Living with Retinitis Pigmentosa&quot;</a></li> +</ul> + + + + + Living with Retinitis Pigmentosa | Articles + + 2024-12-15T05:14:07Z + https://leilukin.com/articles/living-with-retinitis-pigmentosa/ + <p>On 30 November 2024, I was diagnosed with retinitis pigmentosa (RP) after seeing an eye doctor.</p> +<p>My feelings after learning that I have this genetic eye disease that causes gradual vision loss and currently has no cure was more relieved than upset, because I was relieved that to have finally understood the reason behind a lot of the difficulties in my daily life as I grew older, in addition to my autism.</p> +<p>Furthermore, my parents and I already suspected that I have inherited an eye condition that causes visual impairment after learning that some of my relatives on my father's side are starting to have eyesight problems. Therefore, I have accepted the possibility that I might have some incurable eye condition even before my official RP diagnosis. I had relied on glasses throughout most of my life due to having myopia and astigmatism, so I was already not new to vision conditions.</p> +<p>In retrospect, my RP symptoms started to manifest to the point of impacting my daily life in my early 20s. I started to bump into things more often when I walk. My eyes got more sensitive to bright light, including sunlight, to the extent that I found it difficult to see things under sunlight and thus needing sunglasses. My subconscious began to get afraid of falling, causing me to get much more cautious when I walk, especially when walking on steps and crossing over drains, especially in places I was not familiar with. I also had a hard time seeing things not directly in front of me without turning my head.</p> +<p>For a while, my parents and I thought this was because of my autism, as it makes me find it difficult to multitask, including paying attention to all my surroundings at once outside, and me spending too much time sitting in front of a computer, especially since my jobs have all involved a large amount of computer usage, and thus getting less physical exercise. However, now that I was diagnosed with RP, things finally clicked into place: turns out, my peripheral vision had started to get weaker, and my eyes became more sensitive to bright light, including sunlight. In addition, my eye doctor discovered that I am having a mild cataract as a complication of RP.</p> +<p>Since there is currently no cure for RP, the best I can do is to take care of my remaining vision as much as I can, mainly by continuing to wear sunglasses every time I go out in daytime to protect my eyes from sunlight. I am also adjusting my habits of using digital devices, by making the font sizes of my devices larger to make things more comfortable for me to read and trying to take regular breaks from digital screens.</p> +<p>Being diagnosed with a genetic eye disease that can cause vision loss also made me glad that I have started to learn to use screen readers. Even before my diagnosis, I have been using screen readers such as NVDA on Windows and TalkBack on Android to test website accessibility, including my own websites. It is a good idea to prepare myself for the possibility of losing enough vision to the degree of needing low vision aid and assistive technologies. In fact, since I was diagnosed with RP through a dilated eye exam, I was unable to see things clearly for about 12 hours after receiving the eye drop that dilated my eyes, so for the immediate couple of hours after seeing my eye doctor, I needed to activate TalkBack to be able to read things on my Android phone. Furthermore, I am also planning on learning braille.</p> +<p>I do not write this article to ask for pity. I have accepted that I am visually impaired and autistic, and my disabilities are a huge part of who I am, as much as being a non-binary lesbian on the asexual and aromantic spectrum. Instead, I am sharing my story to let other people who have similar conditions that they are not alone, and we are worthy.</p> +<p>I coded a <a href="https://leilukin.com/projects/snippets/disability-pride-flag-background">responsive Disability Pride flag in CSS</a> during the Disability Pride Month in July (which is also my birth month) 2024, so it would be fitting to conclude this article with this Pride flag I coded.</p> +<div class="flag-disability flag-disability-article" role="img" aria-label="Demo of the Disability Pride flag coded in CSS"></div> + + Changelog: 10 December 2024 @@ -217,33 +245,6 @@ <a class="heading-anchor" href="https://leilukin.com/blog/posts/2024-08-18-from-hobbyist-to-professional-web-developer/#wrapping-up" aria-labelledby="wrapping-up"><span hidden="">#</span></a></div> <p>Looking back, even I am amazed by the fact that building this very website kickstarted my path to become a professional web developer, especially since I did not come from a tech educational or industrial background, but I am glad that it happened.</p> <p>I am happy to be able to switch my career path to web development despite not having a computer science degree, and that my prior working experience as a graphic designer helped with getting this new opportunity.</p> - - - - - Changelog: 11 August 2024 - - 2024-08-11T14:46:00Z - https://leilukin.com/ - <ul> -<li>Improve the site's <a href="https://leilukin.com/feed.xml">RSS feed</a>: -<ul> -<li>Make RSS feeds <a href="https://blog.jim-nielsen.com/2021/automatically-discoverable-rss-feeds/">automatically discoverable</a> by feed readers</li> -<li>Use time and time zone to make feed items' timestamps accurate</li> -</ul> -</li> -</ul> - - - - - Changelog: 6 August 2024 - - 2024-08-06T13:20:00Z - https://leilukin.com/ - <ul> -<li>New article: <a href="https://leilukin.com/articles/accessible-footnotes">&quot;How I (Tried to) Implement Accessible Footnotes&quot;</a>, which is also my entry for <a href="https://32bit.cafe/">32-Bit Cafe</a>'s <a href="https://32bit.cafe/~xandra/events/codejam5/">Community Code Jam #5: Back to School</a>.</li> -</ul> \ No newline at end of file diff --git a/index.html b/index.html index 56bbeb60..a39655f6 100644 --- a/index.html +++ b/index.html @@ -436,9 +436,9 @@ drop-shadow(0.1rem 0.1rem 0.2rem rgba(30, 30, 30, 0.8))

    What is New?

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    Changelog: 10 December 2024

    +

    Changelog: 15 December 2024

    View all site changelogs

    diff --git a/now/index.html b/now/index.html index 26f959f7..3347d43e 100644 --- a/now/index.html +++ b/now/index.html @@ -13,11 +13,11 @@ - + - + @@ -364,7 +364,7 @@ drop-shadow(0.1rem 0.1rem 0.2rem rgba(30, 30, 30, 0.8)) -

    What Leilukin is doing now.

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    What Leilukin is doing currently.

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    This page was last updated on .

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    This page was last updated on .

    This is my /now page. You can find more pages like this at nownownow.com.

    You can also check out my status.cafe profile for my latest short status updates.

    @@ -387,10 +387,14 @@ drop-shadow(0.1rem 0.1rem 0.2rem rgba(30, 30, 30, 0.8))
  • Pokémon Trading Card Game Pocket
  • +

    Diagnosed with Retinitis Pigmentosa

    +
    +

    On 30 November 2024, I was diagnosed with retinitis pigmentosa (RP). Therefore, I have written an article about living with the genetic eye disease that causes gradual vision loss.

    +

    Participating in Personal Web Spaces

    I have been making a more active effort in participating in personal web spaces and connecting with other webmasters, through various methods including leaving messages on others' guestbooks, sending other webmasters emails, linking to each other's websites, following each other's Neocities profiles, etc.

    -

    Furthermore, I joined 32-Bit Cafe on both its Discourse forum and Discord on 15 June 2024, and earned the New Member of the Month for June 2024 on the Discourse forum. On 8 June 2024, I wrote and submitted my article, "How I (Tried to) Implement Accessible Footnotes", to 32-Bit Cafe's Community Code Jam #5: Back to School.

    +

    Furthermore, I joined 32-Bit Cafe on both its Discourse forum and Discord on 15 June 2024, and earned the New Member of the Month for June 2024 on the Discourse forum.

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